So, today I went back for a check in and follow up on my tongue tie revision. I’ve found it really interesting to go through this entire experience. It’s brought me worlds of understanding about what babies and kids are probably going through. I’ve also noticed additional physical changes since my last post. I’ve also had some thoughts about tongue ties that aren’t proven, but I think connect some dots about things we already knew about.
First of all, this is what my tongue looked like this morning:
Notice something that we didn’t see before? There are three attachments that you didn’t see before. As my tongue healed, they became more and more noticeable. Also, starting at the end of last week (2 1/2 weeks after the initial revision), I started to feel the tension that I had before, but on the right side of my body. It’s also interesting to note that the attachment on the right side of my tongue was the least prominent of the 3. I had severe scalp pain on Sunday. too.
There are a few things I’ve observed that I really want parents AND providers to know about:
- First of all, these additional attachments came forward on their own as my body resettled and all of my bones and muscles shifted post-revision. So if you see attachments after a revision is healed, do not assume the professional who did the revision didn’t do a complete job. Furthermore, professionals who do revisions SHOULD do additional revisions at no extra fee, or figure out a way to make such an arrangement work.
- There was some tissue that did almost look like it reattached, but that tissue did not affect the function of my tongue.
- As the new attachments came forward, especially the center attachment, stretching my tongue became painful. It was very clear that this was tissue that had never been stretched like that before.
- Post-revision body work is essential. I’ve been going in for adjustments to my head and shoulders (knees and toes) right after the revisions and then even a couple of times in between the revisions. Don’t skip this!
- The pain afterwards has been manageable. Eating hasn’t been too bad. However, if your baby was revised and you’re breastfeeding, keep your baby skin to skin a lot that first day and nurse a lot. Breastfeeding reduces pain.
- In addition to the stretches, rinsing with salt water and applying coconut oil to the underside of my tongue has been really helpful in the healing process.
I’ll follow up in a couple of days with additional thoughts that I have as things heal from this last revision. In the meantime, I leave you with this thought:
Tongue ties have been revised for hundreds if not thousands of years. There is already some really interesting research that’s starting to point towards the short term and long term impact of revision (or not revising). However…there are some assumptions that are being made that really need to stop. No, Cranial Sacral Therapy isn’t the only way to do bodywork prior to and after revision, just like not assuming ENTs or any other discipline know how to properly assess what we see. Also, I like being able to measure things just as much as the next person, but I’d strongly caution anyone who wants to ONLY revise according to very rigid standards. There can be a lot of different ways these ties can exist. As I keep saying over and over, providers need to listen to parents and be willing to learn from them and each other. I’ve learned SO MUCH just by talking to parents, kids, and other adults, and some of my biggest revelations have come from consulting with other specialties. I encourage others to do the same.
I’ll check in again soon.